October 13, 2010

October 14, 2010
Brian is in the hospital again, he is being treated for a bacterial infection. They think the infection is coming from his Broviack. If the broviac keeps coming back positive for bacteria they are talking about maybe taking it out. The bacteria is from the red lumen and not the white. If they take it out  he will be soooo HAPPY!!!! He missed out on a lot of swimming this summer because he couldn't get the line wet. In case you don't know what the broviack is It's a line in his chest that they do all the blood draws and he gets his IV's through it instead of them poking him every time they have to do a procedure. Hopefully he gets to go home Friday.
 

October 4 2010

October 5, 2010
Brian has been feeling really good. Has a little pain once in awhile in his right ear but other than that his health is real good!!


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September 24, 2010

September 25, 2010
Brian is still doing good. Last weekend he spent it camping at the beach for the Thunderboat races. He had a good time!!!! It's the first time I have see him playing around like a normal kid in a long time. On Monday he broke out with some small blisters on the side of his face, doctors aren't sure why but put him on a herpes medicine as a precaution. They are gone now. We are so Thankful that he is doing so good, please continue to keep him in your prayers. Thank You

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September 14, 2010

September 15, 2010
Brian had a FANTASTIC visit at the Doctor's today! His Doctor gave the ok to start home schooling and he should be able to go back to school in January if everything is going good with Brian. He seems pretty happy about that!!!! His EBV has been negative and now the CMV is NEGATIVE! Brian is VIRUS FREE AT THIS TIME and FEELING GREAT!! His hair is growing back more every day, when I get a picture of him I will put it up! Please keep the prayers going for Brian!!!!!! Thank You

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September 10, 2010

September 11, 2010
Hi everyone, Brian had appointment at Children's Orange County today for his once a month check up, he is really doing good!! All the doctor's and nurses that took care of him are very happy with his progress!!!!! Today is day +199 for Brian...YAY!!! soon he will be home schooled. He can't wait to go back to school! Brian still hasn't met with Make A Wish, seems every time he is suppose to he ends up in the hospital. He switches back and forth on what he wants, the latest is Hawaii.

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August 28, 2010

August 29, 2010
Brian is doing good, was released from Hospital. They think the infection was a sinus infection. Now he has a blister or boil about the size of a quarter on his forearm, they took a biopsy and we are waiting for results. He is in good spirits wants to go swimming but he can't because of his Broviac Catheter in his chest. Sticking his feet in the pool is no fun!!!!! He was suppose to have his meeting with Make A Wish Wednesday but that got postponed, but that's ok because he still doesn't know...
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August 24, 2010

August 25, 2010
Brian is doing pretty good except tonight he had to go to the Emergency Room because of a fever again. Hopefully this is just a visit and not a stay!!!!!!

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August 20, 2010

August 21, 2010
Brian has been doing good. his blood test for EBV came back negative but now has CMV again. More meds!  He has a doctor appt every week to check for problems and to keep an eye on him. Other than that there is nothing else to report. We had a good turnout for the Chili's Fundraiser.Brian says Hi and Thank You for all the support.

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August 9, 2010

August 10, 2010
Brian has been doing real good! There is a Fundraiser at Chili's Paseo Del Rey in Chula Vista on Wednesday August 11, 2010 from 11am to 11pm, when you pay your bill 15% goes to Brian and raising Awareness for ALD. You have to present a flyer when you pay your bill for the 15% to go to Brian. Hope you can make it. Thanks

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August 1, 2010

August 1, 2010
Brian was released from the Hospital around 5pm yesterday, he is feeling good!!!!

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